-by Julia Roberts
Quinnlin is 10 years old. The bear she is holding is a new friend, Champ – or Champerina, as Quinnlin has renamed her. They’re on a special journey. This journey involves doctors, therapists, special educators, resilience and a sense of humor.
More than just a furry friend, Champerina goes everywhere with Quinnlin.
Quinnlin was born with a rare eye disorder and kidney disease. Her combination of symptoms is so rare, there are only three known cases in the world. Diagnosed at birth, Quinnlin has endured tests, treatments and ultimately kidney failure and finally a kidney transplant on her 8th birthday in September 2009. The syndrome, also affecting Quinnlin’s brother Gage, has caused developmental delays. Quinnlin’s life often revolves around physical, occupational, and speech therapy, several different medicines every day, and special education services at school.
The impact of being “different” can be hard on Quinnlin. She is noticing more and it’s challenging. While her differences can set her apart, she is a really good advocate and speaks out when she’s feeling bullied, or embarrassed by a modification at school. Recently she changed scouting troops to a more inclusive troop and asked that a change be made at school so she didn’t stand out so much as “different.” At 10, she’s handled more challenges in her life than some adults, yet she still loves her life.
Quinnlin & Champerina: Friends for life!
It’s a big life for a little girl. When Build-A-Bear Workshop asked Quinnlin and her family to share her big life with special needs over the next year with a new friend she immediately said, “Yes!” For starters she loves making Build-A-Bear Workshop friends. She’s also a little girl who soaks up attention: as she says, “I will have a bear and we will be famous together!” She said yes, too, because she knows how much comfort can be found in snuggling with a stuffed animal.
Quinnlin made Champerina last month in Atlanta. She picked out sparkly Victoria Justice clothes and took special care in selecting the perfect blanket, pillow and accessories. Quinnlin couldn’t believe she got to pick out a scouting vest for her bear! Making Champerina was an event. How could it not be? Quinnlin got to kiss a heart, spend a long time picking clothing and bear (ear!) bows, and make a birth certificate!
Doctor Champerina to the rescue!
Not so surprising is the fact that Quinnlin also picked out the medical kit at the Build-A-Bear Workshop store as an accessory for Champerina. Quinnlin had a long conversation with her brother about what he calls the medicine syringe in the kit because she insists it’s a needle. She should know.
Champerina has already comforted Quinnlin through a difficult time. Because Quinnlin takes a lot of medicine to keep her kidney safe it means her body isn’t able to fight off everyday germs. Recently, a regular cough and cold turned into something worse which kept her out of school for a week. After several doctor appointments she still ended up in the E.R., where she underwent tests and was prescribed yet, another medicine. She has had many trips to the hospital in her short life, so Quinnlin knows what to bring: a blanket and a friend, of course. Luckily Quinnlin didn’t need to be admitted to the hospital this time, so in the middle of the night Champerina and Quinnlin were able to come home.
When Quinnlin said, “Yes!” to telling her story here for Build-A-Bear Workshop, she knew she’d love creating a new friend. She had no idea that she’d need Champerina’s comfort in just a few days, through another round of needles, x-rays, and medicine. It looks like Champerina has already established her place in the family, and in Quinnlin’s heart.
-Julia Roberts, Quinnlin’s mom
February 17th, 2012 at 12:46 am
[...] Champerina. I have to say, the girl is loving it. She hammed it up for the first post, which is here on their brand new blog. Go and read and comment and share. They are helping support Support for Special Needs and that [...]
March 21st, 2012 at 9:43 am
Thank you Jana! You know I love to share a picture of a cute girl and a cute bear!
February 17th, 2012 at 6:46 am
I love this so much! What a special friendship Quinnlin and Champerina are going to have!
February 17th, 2012 at 7:10 am
Quinnlin rocks! So does Build-A-Bear and mom Julia for telling her story! I hope lots of other people are inspired by her story like I am.
March 21st, 2012 at 9:43 am
Thank you Sue!
February 17th, 2012 at 6:19 pm
Way to go Build-a-Bear for being true Champs!
March 21st, 2012 at 9:45 am
They are terrific people…Chief Executive Bear to Digital Community Marketing Bear! All of them!
March 7th, 2012 at 10:22 am
I really love you BUILD-A-BEAR WORKSHOP ot is so much fun to make them!
March 21st, 2012 at 9:46 am
We do love a visit…Quinnlin has her eye on Hello Kitty!
March 7th, 2012 at 10:23 am
Your bear is really cute I hope you will be the beary best of friends!
March 21st, 2012 at 9:46 am
Thank you! They’re already best bear buds!
March 28th, 2012 at 6:00 pm
[...] mom, Julia Roberts, is sharing her story this year. Click here to read more about them! Share this:TwitterFacebookLike this:LikeBe the first to like this post. This entry was posted on [...]
March 30th, 2012 at 6:46 pm
Your welcome! I am really happy for you and your daughters beary beat friend!!!!!!!!!!!! It was a very good choice! I have the older champ bear named Kevin!!! I have 21 because they are soooooooooo adorable!!!!!!!!!!!
March 31st, 2012 at 2:58 pm
I THINK THAT THIS WAS A BEARY SWEET STORY!!!!! THANKS FOR SHARING IT!!!!!!!!!!!!!!!!!!!!
April 10th, 2012 at 6:08 am
[...] featuring Champ (not to be confused with Champerina), the famous Build-A-Bear Workshop bear who was created specifically to highlight children’s [...]
April 12th, 2012 at 8:02 am
[...] you know, I’ve started to share Quinnlin’s story with her new bear Champerina on the Build-A-Bear Workshop blog. It’s all with Quinnlin’s approval and input, which has actually been a great thing for [...]
April 13th, 2012 at 2:09 pm
Precious story, beautifully told. Yup, you’re a FAMOUS family which is very well-deserved. You’re inspiring and encouraging others because you have an outstanding way of meeting challenges and finding many ways to share!
You’re a beautiful girl, Miss Quinnlin and Champerina is charming, too.
Stay strong in God’s love. His Light shines through you!
May 17th, 2012 at 7:54 am
Thank you so much Michal
April 17th, 2012 at 6:31 am
[...] the first post about Champerina, Quinnlin has had multiple doctor appointments, nearly two weeks out of school for illnesses, three [...]
April 17th, 2012 at 9:34 pm
I hope that your bear will help you get thorough the rough times! Good Luck!!!
May 5th, 2012 at 1:31 pm
i have this champ bear!!!!!!!!!! I just got her today!!!!!!!
May 17th, 2012 at 7:55 am
Champ is an awesome friend! So happy for you!
June 13th, 2012 at 7:01 am
[...] a break from all of those appointments and go to the Friends Reunion at Build-A-Bear Workshop. She brought Champerina and her new friend, (Florida) Sonny. Quinnlin’s other BFF, Lilly, was joining her on this day and [...]
October 12th, 2012 at 8:17 pm
Me and and peace and heartsbbear Hopie are same way. They know the inside of a hospital too well
Feel. Better Quinnlinn